Recovery from Nystagmus after 16 years

Patients who are eventually diagnosed into 'MS' initially have very many symptoms ranging from headaches at a young age to IBS/IBD neck pain. fatigue etc. They may have even been classed into CFS initially but later go onto develop eye symptoms. When this occurs the physicians order an MRI scan during which plaques may be found in the brain. This finally leads to a diagnosis of 'Multiple Sclerosis'.
If this is how you were first diagnosed it will be interesting to hear some of your stories.

Recovery from Nystagmus after 16 years

Postby themsforum.org » Thu, 13 Jun 2013, 9:38 pm

Please see this thread under TMJ disorders
Re: My MS diagnosis jooba20

Post by jooba20 » Mon Apr 08, 2013 5:48 pm
I hadn’t realised how long it had been since I last posted about my improvements. First of all I must tell you about 2 symptoms I have learned to live with over the years. I have had nystagmus in both my eyes when I look to the side for at least 16 years – it was what prompted my visit to my GP and resulted in an MRI and MS dx. A few days ago I showed my mum that my eyes were getting better and showed her my ‘party piece’ of looking to the side and my eyes jumping about. But they didn’t. She was ecstatic!
The other symptom has been with me for at least 12 years. When I tilt my head back I feel dizzy and sick. Gone.

There has been some improvement in my walking – I cant put my finger on it but i feel my steps are straighter and better. I am now working hard on physio. As I am now fatigue free I can really work on strengthening wasted muscles. I feel like I’m not owned my ‘MS’ anymore and can take control of myself again.
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